Saturday, February 15, 2014

Five More Days....

Five more days.....that's what I keep chanting to myself.  Five more days, and I'll be enjoying the beautiful sunshine here:




Vegas, baby!  Oh, I seriously can't wait!  I get to enjoy a quick, kid-free, girl's weekend with some of my best friends from high school.  We'll see a show, see some sights, and definitely eat some delicious food.  I've been counting down to this for weeks....I need me some vitamin D!

Here's the problem...travelling always makes me a bit nervous.  I think that anyone who has CMT, or who has traveled with someone with CMT, will understand this feeling.  Will places be accessible?  Will there be adequate handicap parking? Will I have to walk a great distance, or stand in a forever-long line to get to do/see the things I want? 

The last time I went to Vegas, I took my standard wheelchair, and my sweet husband pushed me around everywhere we went.  (He's a total catch, right?)  And, it about killed him.  It was a lot of pushing.  I've decided not to take the wheelchair this time around, and though I'm firm in my decision, I still worry about the toll this choice will take on me.  My pulled quad muscle still isn't fully healed, and I've developed a fairly painful callous on my left foot where I wear my AFO.  To say the least, I'm a bit sore by the end of the day.

Anyway, I'm trying really hard to not worry about things.  Don't want to let CMT get in the way of my fun, right?  Honestly, I can't wait to get away with these ladies....a great time will definitely be had!  Wish me luck!

Monday, February 3, 2014

My Apologies

Wow....has it really been that long since I posted?! I thought it had just been a couple months, but over a year?  I couldn't believe it.  I guess that blogging took a big back seat to everything else that's been going on.  For those (very few) of you who may still follow this blog, I'm trying to be better!  No big promises, though.

Ok, time to play some catch-up.  Here's my amazing, fun, crazy family:


Seriously, when did they all get so big?!  Tyler is 10 now, Kaiden is 8, Addison will be 6 in a few weeks, and Alexis is almost 3.  They are all such amazing kids....so smart, funny, and creative! (And yes, I know I sound totally biased.)  Some days it's hard to keep up with all of them and their never-ending energy, especially with CMT, but I do my best.  Zuke and I just celebrated our 6th wedding anniversary!  It seems like we've been together a lot longer, but in a good way. LOL.

Speaking of my CMT, I seem to be at a plateau for now. (Knock on wood!)  I started having some hip problems late last spring, and found a new hip specialist that I went and saw.  I'm usually a bit wary of new doctors, but I actually really liked him.  He took the time to explain every little thing to me, and helped me come up with a plan to try and postpone the inevitable hip replacement as long as possible.  We decided to try a cortisone shot into my hip joint, to see if that would relieve the pain.  Oh my goodness, that thing was miraculous!!  The doctor said I could come back every 3-4 months if needed....this one lasted 7 months!  I just went back in for another shot, and I'm hoping it lasts as long as the first one.

In other news, I just signed up for my very first gym pass!  I'll admit that I've always been intimidated by going to the gym.  Not just by all the skinny, buff people, but because there are quite a number of things that I am unable to do at the gym.  Luckily for me, I have a great friend who is helping me stay motivated, and helped me realize that it's time I get in shape for myself.  I haven't been too many times yet, partially due to an aggravated quad muscle in my knee, but I'm so excited to start this journey!

Well, that's how my CMT is in a nutshell.  There are so many other things I could write about right now, so many other things that have been going on, but I'll just leave it at this for now.  Hopefully you will hear from me again, soon!