Sunday, September 9, 2012

Presidential Proclamation


As some of you may know, I volunteer as a support group facilitator for the Charcot-Marie-Tooth Association.  I just got off of my monthly conference call, and WOW....there is so much that is going on!  You should take a minute and check out their awareness month site.  Go on.  Do it.  You know you want to!

One of the coolest things that is in progress (in my opinion, anyway) had been an initiative to get President Obama to nationally declare September to be CMT Awareness Month....forever!  This plan has been in the works for quite a few months, and many members of the CMTA have been making phone calls and sending letters to their state representatives asking them to sign this initiative.  And now...the initiative has been sent to the White House!!

Now, here comes the really fun/cool part.  The CMTA is asking each of us to call the White House.  Yes, you read that right.  Pick up your phone and call the White House.  Call  202-456-1111, which is the official White House Comment Line. Leave a message asking that the President support the "Dear Colleague Letter" and officially proclaim September as CMT Awareness Month.  The phone is pretty busy, so just hang in there, you will get to a real person. I've done it, and you can, too!  I had to spell Charcot-Marie-Tooth and explain what it was, so I spread awareness just by making the call! Remember this is a non-partisan request.  There is no funding required, no legislation attached. 

Please, please, please take 5 minutes and make this call, and then invite everyone you know to do the same.  It is such a simple (and honestly, really cool) thing that we can all do that would make such a huge difference in spreading awareness about this disease!

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