I recovered from that surgery well, and was back to normal function (for me, anyway) within about 6 months. I had two lovely battle wounds (aka, scars) to show for my suffering, one of which was 12 inches long down the side of my thigh. The doctor, my parents, and myself were quite happy with the outcome, but I distinctly remember one specific thing that the doctor told me.
"You should try to be done having your kids by the time you're 30, because you'll likely be looking at a hip replacement by then."
I was a bit concerned about that statement at the time. I was only 18 years old, and nowhere near getting married or having children. 12 years to do all that seemed like not much time! Luckily for me, in this case, I had my first child at age 21, and had my last at age 28. I was done....I had made the deadline!
My hip hasn't given me too much grief, except when I tend to wear myself out or push myself too hard, but that's expected. That is, until about 2 months ago....2 months shy of my 30th birthday.
As I sat in the Hip Specialist's office this morning, I started feeling a lot of anxiety. I had gotten my x-rays, and the tech had commented, "Wow, that is one bad hip! And it looks like it's been bothering you for a long time!" Yeah....not reassuring. As I waited for the doctor, I began perusing a pamphlet about total hip replacements. BAD IDEA! I could feel both the anxiety and tears welling up, and I tried really hard to shoo them away before the doc came in. I was really starting to despise all this CMT stuff...
Luckily, things were not at all as bad as I was fearing. The hip dysplasia is still there, and still fairly bad, and I have bone spurs on the top and bottom of the ball part of the joint. However, I still have a good amount of "joint space" and a decent amount of cartilage! That means no surgery for me! At least not yet. I will eventually be looking at a total hip replacement, but as the doc said, the longer I can put it off, the better off I will be in the long run.
So for the time being? Physical therapy and lots of anti-inflammatories. Oh, and a prescription for custom shoes. We found out today that there is about a 1-inch difference in length between my left leg and my right. My AFO makes up for some of it, but if we build up the AFO any further, I won't be able to fit it into any shoes. So, custom shoes it is! Hopefully this plan will help eliminate a lot of the pain I've been experiencing, and if not, it will be back to the drawing board!