Wednesday, September 7, 2011

New Friends

Today ended up a lot differently than it started. Thank heavens! I was trying to get out the door to take Addison to dance class, and it seemed like it was just one thing after another. Then, of course, we get stuck behind the driver who insists on driving at least 10 miles under the speed limit. I had found an elevator to take down to the basement to dance class (I had Alexis in the stroller with me), but before class was over, someone had shut and locked the access door to get back to the elevator to get upstairs. Lucky for me, two of the other moms offered to help get the stroller and carseat with baby inside up the stairs for me. I'm grateful for people who see a need and don't ask questions, but jump in to help.

In any case, by the time we got home, I was wiped. I put Alexis down for a nap, fed Addison lunch, and sent her to her nap as well. Then I planted myself on the couch with my Dr. Pepper and a rerun of Grey's Anatomy, content to spend a chunk of my afternoon vegging. That is not what ended up happening at all.

I found out today that the newspaper article in the Daily Herald was read by a couple other CMT patients in my area, and both of them contacted me! I was so excited, because I have never met another CMT patient face-to-face! Ann contacted me through Twitter (which I admit I hardly ever use), and we exchanged a couple emails today. We discussed the possibility of putting together an official support group in our area in the near future, which I am so pumped about! Karri read my article, and then found me on facebook. We actually spent half an hour chatting on the phone about our symptoms and how CMT affects us. It's always amazing to me as I chat with people how differently CMT affects each of us, but yet how so much of it is the same. The two of us also talked about the possibility of a support group, and will be meeting up for lunch or dinner soon.

I got off of the phone with Karri today, and had to fight back the tears. For years I have felt so alone with this disease, having never been able to talk to other people who have gone through or are experiencing the same things as I am. I am so grateful for all of the people I have had the blessing of coming in contact with this past month. Michelle Hayes, Lenka, Michele, Jeana, Karri, Ann, and everyone else I have talked to or will get the opportunity to talk to....THANK YOU! Thank you so much for being willing to share your stories and your lives. Thank you for being such an amazing support. I hope that I can return that friendship and support to each of you!


Carter's Mom said...


I feel blessed to have found you too. We are all in this journey together and together we will indure the ups and downs, twists and turns and of course plenty of tears and cheers! I am so happy that you met 2 ppl in your area that have CMT. Together we all can work to find a cure. Talk to you soon!

Casee said...

This is wonderful! I am so glad that you found some friends that can relate to what you are dealing with!